We were first introduced to Children’s Hospice South West (CHSW) in 2015 when Rosie was diagnosed with Nemaline Myopathy.
CHSW is a charity providing respite and hospice care … More Weekend break at Charlton Farm Children’s Hospice
We don’t get away much!
In fact we’ve not been away longer than a weekend in years (and those are mainly going to visit family!).
We tried a couple of years ago when Iain’s mum and dad kindly paid for all the family to stay together in a wonderful house by the sea in Perranporth, Cornwall. However
… More Devon delights
When Rosie was first diagnosed with a neuromuscular condition we felt
isolated, alone and scared. We were desperate to connect with other families going through a similar thing to build a support network.
An amazing nurse who we love dearly called Dominique … More A Half Marathon for Rosie’s friend Issy
Back in June 2016 and after a few months patiently waiting, Rosie finally had her first try in a Wizzybug.
A Wizzybug is an absolutely ingenious powered wheelchair invention that enables children under five who are unable to get around by themselves the chance to gain independence, play, move and have fun. … More Wizzybuggin’
My Weak Muscles 