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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Tag: special needs

A year living with Complex 1 Deficiency (part 2)

November 25, 2016

So here we were. Rosie was in hospital recovering from another nasty cold. Her lungs were collapsing left, right and centre – literally – and Iain and I were dealing with the news that Rosie was going die … More A year living with Complex 1 Deficiency (part 2)

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Falling face first

November 21, 2016

It was bound to happen one day and today was it. All I can say is lesson learned!

Iain and I have been getting more confident with Rosie’s sitting ability. She loves to sit on the edge of chairs, swinging her legs … More Falling face first

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What are our names?!

November 19, 2016

We’ve been spending a lot of time recently on Rosie’s communication and she’s now a real chatterbox – there’s no stopping her!

She listens so intently, watching our mouths move and … More What are our names?!

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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