My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

Bath Half Marathon 2017 – Team Isabel did it!

March 14, 2017

I’ve been braving the cold, dark winter (avoiding the rain!) in preparation for this event since October 2016, but despite my efforts to get my fitness levels and distance running up, I still found it SO tough! … More Bath Half Marathon 2017 – Team Isabel did it!

A Half Marathon for Rosie’s friend Issy

January 27, 2017

When Rosie was first diagnosed with a neuromuscular condition we felt
isolated, alone and scared. We were desperate to connect with other families going through a similar thing to build a support network.

An amazing nurse who we love dearly called Dominique … More A Half Marathon for Rosie’s friend Issy