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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Tag: say my name

What are our names?!

November 19, 2016

We’ve been spending a lot of time recently on Rosie’s communication and she’s now a real chatterbox – there’s no stopping her!

She listens so intently, watching our mouths move and … More What are our names?!

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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