I made a quick call to Iain and Rosie in the morning to say my last goodbye for a while as I didn’t know when I would be able to get signal again. 27 slightly anxious people, most of us strangers, all gathered in the reception … More Mt. Kilimanjaro Part 2 : Machame Gate to Shira Cave Camp
I am totally delighted, extremely excited and incredibly proud to announce that on the evening of Friday 16th June 2017, Rosie’s Charity Ball will take place at Clevedon Hall … More Rosie’s Charity Ball – 16 June 2017
Rosie is rare.
In fact, there are less than 50 people here in the UK with Nemaline Rod Myopathy. Less than 50. And today we are celebrating her rarity as it’s officially Rare Disease Day! … More Rosie features in Muscular Dystrophy UK’s Rare Disease Day campaign 2017!
My Weak Muscles 