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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Tag: Mount Kilimanjaro

Mt. Kilimanjaro Part 4 : Baranco Camp > Karanga Camp

February 9, 2018

Baranco camp was busy and tension ran high. Today we’d be tackling the infamous Baranco Wall – a 257m zig zag scramble on the next stage of our journey. The Great Baranco Wall is known locally … More Mt. Kilimanjaro Part 4 : Baranco Camp > Karanga Camp

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Rosie’s Charity Ball – 16 June 2017

April 4, 2017

I am totally delighted, extremely excited and incredibly proud to announce that on the evening of Friday 16th June 2017, Rosie’s Charity Ball will take place at Clevedon Hall … More Rosie’s Charity Ball – 16 June 2017

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Mount Kilimanjaro calls (Part 2)

January 10, 2017

So, there I was feeling alive, brave, inspired, strong and capable. Then my Mt. Kilimanjaro welcome pack arrived and I crumpled.

I’ve always been the type of person (usually needing a bit of persuasion or a glass of wine!) to spontaneously agree or sign … More Mount Kilimanjaro calls (Part 2)

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Mount Kilimanjaro calls (Part 1)

December 20, 2016

In 2009, I watched nine celebrities reach the top of Mount Kilimanjaro – the highest freestanding mountain in the world – on television in aid of Comic Relief.

Describing the climb as ‘horrific’, ‘agony’ and ‘hell on earth’, I watched … More Mount Kilimanjaro calls (Part 1)

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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