I am totally delighted, extremely excited and incredibly proud to announce that on the evening of Friday 16th June 2017, Rosie’s Charity Ball will take place at Clevedon Hall … More Rosie’s Charity Ball – 16 June 2017
I’ve been braving the cold, dark winter (avoiding the rain!) in preparation for this event since October 2016, but despite my efforts to get my fitness levels and distance running up, I still found it SO tough! … More Bath Half Marathon 2017 – Team Isabel did it!
When Rosie was first diagnosed with a neuromuscular condition we felt
isolated, alone and scared. We were desperate to connect with other families going through a similar thing to build a support network.
An amazing nurse who we love dearly called Dominique … More A Half Marathon for Rosie’s friend Issy
My Weak Muscles 