My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

Mt. Kilimanjaro Part 2 : Machame Gate to Shira Cave Camp

October 10, 2017

I made a quick call to Iain and Rosie in the morning to say my last goodbye for a while as I didn’t know when I would be able to get signal again. 27 slightly anxious people, most of us strangers, all gathered in the reception … More Mt. Kilimanjaro Part 2 : Machame Gate to Shira Cave Camp

A Half Marathon for Rosie’s friend Issy

January 27, 2017

When Rosie was first diagnosed with a neuromuscular condition we felt
isolated, alone and scared. We were desperate to connect with other families going through a similar thing to build a support network.

An amazing nurse who we love dearly called Dominique … More A Half Marathon for Rosie’s friend Issy