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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Tag: dancing

Mt. Kilimanjaro Part 6: The final part of the journey

July 28, 2018

The best way to descend from the roof of Africa is to sand surf. The slopes are steep and sandy and the guides want to get you down as quickly as possible to avoid the unfiltered rays of the sun – which are growing stronger by the minute … More Mt. Kilimanjaro Part 6: The final part of the journey

1 Comment Mt. Kilimanjaro Part 6: The final part of the journey

No more midday nap = way more fun!

November 28, 2016

We’ve just had a Rosie regime shift and it’s turned out to the best thing we’ve done for a long time!

Rosie’s sleeping habits have been far from ideal. Unable to roll over or move herself … More No more midday nap = way more fun!

2 Comments No more midday nap = way more fun!

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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