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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Tag: contractures

nemaline myopathy and complex 1 medical journal

Rosie in the medical history books

May 10, 2020

A few years ago I wrote a couple of blog posts about Rosie being diagnosed with Mitochondrial Complex 1 deficiency. It was a bitter blow followed by a total miracle.

Over the last few years there have been big questions about how … More Rosie in the medical history books

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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Huge thank you to the mystery sender of this delightful package! What a fabulous surprise :)
Much needed R&R this weekend!
Happy 1st birthday my little gorgeous man 💙 you certainly bring the entertainment (and a lot more noise and mess) and we wouldn't want it any other way!
CAN YOU HELP MY ROSIE CLIMB A MOUNTAIN?
Totally fallen in love with this gorgeous ball of fluff! Welcome to the family Whiskey Bob! 💙
A rare Saturday morning sleepy cuddle with his big sister ❤
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