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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Tag: children’s hospice

Weekend break at Charlton Farm Children’s Hospice

April 22, 2018

We were first introduced to Children’s Hospice South West (CHSW) in 2015 when Rosie was diagnosed with Nemaline Myopathy.

CHSW is a charity providing respite and hospice care … More Weekend break at Charlton Farm Children’s Hospice

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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