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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Tag: aquarium

No more midday nap = way more fun!

November 28, 2016

We’ve just had a Rosie regime shift and it’s turned out to the best thing we’ve done for a long time!

Rosie’s sleeping habits have been far from ideal. Unable to roll over or move herself … More No more midday nap = way more fun!

2 Comments No more midday nap = way more fun!

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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