Skip to content

My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

Home
About
Blog
The Condition
Contact

Contact

If you’ve been inspired by anything you’ve read here or have any stories or ideas you wish to share, please do get in touch. I’d love to hear from you!

Lisa x

Name(required)

Email(required)

Comment(required)

Search

Search for:

My Weak Muscles

Here you've found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

Instagram

The fabulous staff and wonderful shoppers at Tesco, Clevedon are getting involved in Rosie's new wheels fund!! This is so cool! Some great prizes to win on the Tesco Tombola today, get on down!!! #tesco #tescotombola #tescoclevedon #charitysupport #rosieswheels #thankyoutesco #communitysupport

The last 7 days went crazy, so tonight we grabbed a moment of calm at Clevedon's beautiful sea front to reflect on the week, thank the universe for being on our side and imagine all the places Rosie can go when she gets her new power chair (Iain's on the ordering case tomorrow!). We will forever be eternally grateful for your amazing donations, love, support and advice x x x THANK YOU, THANK YOU, THANK YOU! x x x #sunset #daddyanddaughter #daddyandrosie #calm #clevedon #clevedonseafront #myweakmuscles #reflecting

Just unbelievable! We are so so SO grateful for everyone's support so far! Still trying to get my head round everyone's generosity! WOW! #almostthere #rosieswheels #powerchair #crowdfunding #feelingblessed

Never in our wildest dreams did we think - as Iain and I sat writing our Go Fund Me page a week ago - that we'd only be a few hundred pounds away from being able to order a new power chair for Rosie. Iain and I have been totally overwhelmed with kindness! Through your amazing support, donations, charity events and help to spread the word of our fundraiser, it has blown our minds that you've already helped to raise over £10,950 in 6 DAYS .... in just 6 DAYS!! Just totally unbelievable! Thank you from the bottom of our hearts for all of your help so far and to the power of social media! THANK YOU SO MUCH for helping us to improve our little girls life. I found this video and imagine that this is how she will respond when her new wheels arrive!! www.gofundme.com/rosieswheels #rosieswheels #teamrosie #myweakmuscles #musculardystrophy #nemalinemyopathy #fundraising #gofundmecampaign #575shares! #almostthere

We must be the luckiest people in the world knowing such fantastic people! Last night we set up a Go Fund Me page to help us buy a new powerchair for Rosie. In 24 hours, this little lady has received over £4k in donations (toward our £11.5k target) and the page has been shared over 260 times - such generosity from family, friends and complete strangers never fails to astound me! THANK YOU to everyone who's donated, shared Rosie's go fund me page, signed up for tough challenges, organised work events or just messaged with support today - YOU ARE ALL AMAZING! If you'd like to get involved in anyway get in contact! Simply sharing the go fund me link www.gofundme.com/rosieswheels to help spread the word would be really appreciated! #feelingblessed #rosieswheels #newpowerchair #electricwheelchair #gofundmecampaign #gofundme #myweakmuscles #freedom #permobilkoala

Fun couple of days crafting, baking, going to a flower show, picking up two new friends (inspired by the film Coco) and playing with 'Norman' the guinea pig! #coco #guineapig #fairycakes #lastweekbeforeschoolstarts #crafts #activitieswithdisabilities #myweakmuscles #musculardystrophy #normantheguineapig

Follow My Weak Muscles on WordPress.com