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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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If you’ve been inspired by anything you’ve read here or have any stories or ideas you wish to share, please do get in touch. I’d love to hear from you!

Lisa x

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My Weak Muscles

Here you've found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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Such a special moment watching Rosie meet her baby brother for the first time 💙💙💙 Introducing the new addition to the Moncrieff household ... a healthy baby boy born 11th October at 14:14, 7lb 13oz. Welcome to the world Reggie ❤ #bigsister #littlebrother #familyoffour

So lovely hearing @jamie.theakston talking about our Rosie on Heart FM this morning. Head over to @thisisheart on Insta to see us in Bristol yesterday (Day 6) and hear Iain doing his radio bit!! Jamie was so lovely with Rosie and all the kids from @springboardopportunitygroup who were able to cheer him across the Bristol finish line yesterday afternoon. Even after all those days and hours of cycling he still spent over an hour with us meeting the kids, watching Rosie sing and generally being a thoroughly nice bloke! #bikebritain #jamietheakston #springboardopportunitygroup #thisisheart #heartfm #myweakmuscles #globalsmakesomenoise Images: @thisisheart

Fun afternoon welcoming @jamie.theakston to Bristol as part of his #bikebritain challenge for Global's Make Some Noise. Rizz even got to perform a little number for him too! The @thisisheart radio presenter is cycling 650 miles from Edinburgh to London to raise money for small charities all over the UK and @springboardopportunitygroup is one of those charities! #springboardopportunitygroup #heartradio #heartfm #jamietheakston #globalsmakesomenoise #bikebritain #specialneeds #disability #charity #myweakmuscles #musculardystrophy #mitochondrialdisorder #nemalinemyopathy To support Jamie's epic challenge Text JAMIE10 to 70766 to donate £10, or JAMIE20 / JAMIE30 to donate £20 or £30 https://bikebritain.everydayhero.com/uk/jamie

Getting our pumpkins early this year since Rosie's little brother should be making an appearance this week! @thepumpkinpatchsomerset #pumpkinpatch #pumpkins #puxtonpark

Eeek! So this is happening!! 💙💙💙 Rosie is so excited to be a big sister, although in her words '"it's taking a long time"! She was hoping for a baby brother so glad we could make her wish come true! #20weekspregnant #babybrother #20weekscan #pregnant #newchapter

This has to be one of my favourite drawings from Rosie - Mr Tickle! #mrtickle #mrmen #5yrsold #kidsdrawing #muscledisorder #littlemissbooks

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