We were first introduced to Children’s Hospice South West (CHSW) in 2015 when Rosie was diagnosed with Nemaline Myopathy.
CHSW is a charity providing respite and hospice care … More Weekend break at Charlton Farm Children’s Hospice
We don’t get away much!
In fact we’ve not been away longer than a weekend in years (and those are mainly going to visit family!).
We tried a couple of years ago when Iain’s mum and dad kindly paid for all the family to stay together in a wonderful house by the sea in Perranporth, Cornwall. However
… More Devon delights
It’s been a little bit quiet here lately!
So much has happened since my last post on April 4 – a new job, family member, book launch and album recorded, birthday parties, weddings and family outings combined with the biggest event in the Clevedon calendar – Rosie’s inaugural Charity Ball! … More Rosie’s Charity Ball (Part 1 – the run up!)
When Rosie was first diagnosed with a neuromuscular condition we felt
isolated, alone and scared. We were desperate to connect with other families going through a similar thing to build a support network.
An amazing nurse who we love dearly called Dominique … More A Half Marathon for Rosie’s friend Issy