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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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A year living with Complex 1 Deficiency (part 2)

November 25, 2016

So here we were. Rosie was in hospital recovering from another nasty cold. Her lungs were collapsing left, right and centre – literally – and Iain and I were dealing with the news that Rosie was going die … More A year living with Complex 1 Deficiency (part 2)

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Rosie goes into respiratory arrest

October 20, 2016

Rosie had a temperature, wasn’t sleeping or keeping her feeds down. We’d seen it all before. We knew the drill. ‘Let’s not panic’, my husband Iain and I had said to each other. … More Rosie goes into respiratory arrest

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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