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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Category: Special occasions

Rosie’s Charity Ball (Part 2 – the main event!)

July 5, 2017

We did it!!! I can’t believe that three months ago, three friends consumed three bottles of wine (and a little bit more) and made the beginnings of a plan to organise a spectacular charity ball with the aim to raise over £5,000 for Muscular Dystrophy UK and I can’t believe we did it! Our grand total … More Rosie’s Charity Ball (Part 2 – the main event!)

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Rosie’s Charity Ball (Part 1 – the run up!)

June 23, 2017

It’s been a little bit quiet here lately!

So much has happened since my last post on April 4 – a new job, family member, book launch and album recorded, birthday parties, weddings and family outings combined with the biggest event in the Clevedon calendar – Rosie’s inaugural Charity Ball! … More Rosie’s Charity Ball (Part 1 – the run up!)

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Rosie’s Charity Ball – 16 June 2017

April 4, 2017

I am totally delighted, extremely excited and incredibly proud to announce that on the evening of Friday 16th June 2017, Rosie’s Charity Ball will take place at Clevedon Hall … More Rosie’s Charity Ball – 16 June 2017

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Rosie’s 3rd birthday celebrations (Part 1)

March 20, 2017

When I sat down to write this post tonight the words to Fatboy Slim’s ‘Praise You’ immediately popped into my head … More Rosie’s 3rd birthday celebrations (Part 1)

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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