We were first introduced to Children’s Hospice South West (CHSW) in 2015 when Rosie was diagnosed with Nemaline Myopathy.
CHSW is a charity providing respite and hospice care … More Weekend break at Charlton Farm Children’s Hospice
We’d booked tickets months ago to see The Lion King at London’s Lyceum Theatre. Part as a wedding anniversary present from Iain and I to each other and part because Rosie really got into this Disney film in a big way. … More The Lion King
Another 6am start and another welcome hot cup of coffee made outside the door of the tent by one of our kind porters. I slept for six hours last night and despite feeling rested and well, I awake with my emotions in turmoil. … More Mt Kilimanjaro Part 3 : Shira Cave Camp > Lava Tower > Baranco Camp
I made a quick call to Iain and Rosie in the morning to say my last goodbye for a while as I didn’t know when I would be able to get signal again. 27 slightly anxious people, most of us strangers, all gathered in the reception … More Mt. Kilimanjaro Part 2 : Machame Gate to Shira Cave Camp
We don’t get away much!
In fact we’ve not been away longer than a weekend in years (and those are mainly going to visit family!).
We tried a couple of years ago when Iain’s mum and dad kindly paid for all the family to stay together in a wonderful house by the sea in Perranporth, Cornwall. However
… More Devon delights
We did it!!! I can’t believe that three months ago, three friends consumed three bottles of wine (and a little bit more) and made the beginnings of a plan to organise a spectacular charity ball with the aim to raise over £5,000 for Muscular Dystrophy UK and I can’t believe we did it! Our grand total … More Rosie’s Charity Ball (Part 2 – the main event!)
When I sat down to write this post tonight the words to Fatboy Slim’s ‘Praise You’ immediately popped into my head … More Rosie’s 3rd birthday celebrations (Part 1)
Our genetic reports came back earlier this week and we finally have results as to why Rosie was born with Nemaline Myopathy.
In November 2016 both Iain and I went to the hospital in Bristol to give blood. These were to be tested to identify whether we carried any variants of … More Rosie’s condition “de novo”
What a week!
Christmas officially hit the Moncrieff household and it was such a magical experience decorating the Christmas tree with Rosie. … More Santa flight & meeting a paralympian
We’ve just had a Rosie regime shift and it’s turned out to the best thing we’ve done for a long time!
Rosie’s sleeping habits have been far from ideal. Unable to roll over or move herself … More No more midday nap = way more fun!
My Weak Muscles 