A few years ago I wrote a couple of blog posts about Rosie being diagnosed with Mitochondrial Complex 1 deficiency. It was a bitter blow followed by a total miracle.
Over the last few years there have been big questions about how … More Rosie in the medical history books
It’s been a while!
To be honest, I haven’t felt like writing much – nor have I had the time or energy.
Life found my weak points and relentlessly … More “Enough”
So here we were. Rosie was in hospital recovering from another nasty cold. Her lungs were collapsing left, right and centre – literally – and Iain and I were dealing with the news that Rosie was going die … More A year living with Complex 1 Deficiency (part 2)
Before September 2015 (and after that terrifying night where she died outside the doors of A&E) we lived in hope that life with Rosie would be manageable. We lived in hope … More A year living with Complex 1 Deficiency (part 1)
My Weak Muscles 