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My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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Category: Charity

Mt. Kilimanjaro Part 6: The final part of the journey

July 28, 2018

The best way to descend from the roof of Africa is to sand surf. The slopes are steep and sandy and the guides want to get you down as quickly as possible to avoid the unfiltered rays of the sun – which are growing stronger by the minute … More Mt. Kilimanjaro Part 6: The final part of the journey

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Weekend break at Charlton Farm Children’s Hospice

April 22, 2018

We were first introduced to Children’s Hospice South West (CHSW) in 2015 when Rosie was diagnosed with Nemaline Myopathy.

CHSW is a charity providing respite and hospice care … More Weekend break at Charlton Farm Children’s Hospice

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Mt. Kilimanjaro Part 5 : Reaching the Summit

March 4, 2018

We were able to sleep in until 6:30 this morning – what a delight.

The kind porters once again bringing a very welcome cup of coffee to the tent door and making sure we were OK. We autopilot into our now seamless morning routine … More Mt. Kilimanjaro Part 5 : Reaching the Summit

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Mt. Kilimanjaro Part 4 : Baranco Camp > Karanga Camp

February 9, 2018

Baranco camp was busy and tension ran high. Today we’d be tackling the infamous Baranco Wall – a 257m zig zag scramble on the next stage of our journey. The Great Baranco Wall is known locally … More Mt. Kilimanjaro Part 4 : Baranco Camp > Karanga Camp

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Mt Kilimanjaro Part 3 : Shira Cave Camp > Lava Tower > Baranco Camp

October 17, 2017

Another 6am start and another welcome hot cup of coffee made outside the door of the tent by one of our kind porters. I slept for six hours last night and despite feeling rested and well, I awake with my emotions in turmoil. … More Mt Kilimanjaro Part 3 : Shira Cave Camp > Lava Tower > Baranco Camp

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Mt. Kilimanjaro Part 2 : Machame Gate to Shira Cave Camp

October 10, 2017

I made a quick call to Iain and Rosie in the morning to say my last goodbye for a while as I didn’t know when I would be able to get signal again. 27 slightly anxious people, most of us strangers, all gathered in the reception … More Mt. Kilimanjaro Part 2 : Machame Gate to Shira Cave Camp

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Mt. Kilimanjaro Part 1 : Leaving for Tanzania

October 6, 2017

Saying goodbye was tough.

I’d been in tears all morning – excited about the adventure ahead and yet terrified about leaving Rosie. Suddenly the thought of being so far away from her without much, if any, contact was just all too much. … More Mt. Kilimanjaro Part 1 : Leaving for Tanzania

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Today’s the day – Africa here I come!

September 21, 2017

I haven’t slept a wink. My stomach is churning – could be the anti-malaria tablets – or maybe just the excited nervousness about what I’ll endure over the next 11 days.

Almost ten months to the day after signing up to trek Mount Kilimanjaro, today I fly out to Africa.
… More Today’s the day – Africa here I come!

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Rosie’s Charity Ball (Part 2 – the main event!)

July 5, 2017

We did it!!! I can’t believe that three months ago, three friends consumed three bottles of wine (and a little bit more) and made the beginnings of a plan to organise a spectacular charity ball with the aim to raise over £5,000 for Muscular Dystrophy UK and I can’t believe we did it! Our grand total … More Rosie’s Charity Ball (Part 2 – the main event!)

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Rosie’s Charity Ball – 16 June 2017

April 4, 2017

I am totally delighted, extremely excited and incredibly proud to announce that on the evening of Friday 16th June 2017, Rosie’s Charity Ball will take place at Clevedon Hall … More Rosie’s Charity Ball – 16 June 2017

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My Weak Muscles

You’ve found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disease and mitochondrial disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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