My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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My Weak Muscles

Here you've found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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Fabulous night at the Springboard charity ball. So much money raised for an amazing place that looked after and helped Rosie for three years and continues to support families like ours every day. Loved that Rosie was a big part of the night too, from a table named after her, video played with her in it, Iain's words read out about what Springboard means to him, Granny's hand made quilt raising £200 and of course the amazing picture from the kids in Rosie's class raising a phenomenal amount of money. Great to have a night out with Iain too!! Thanks granny and pappy for looking after Rosie last night! Thanks to everyone who organised the ball and spent so much time and effort to make it so wonderful. Fab night and looking forward to seeing the total amount raised! Keep up the great work Springboard, you change people's lives ❤❤❤ #springboardcharityball #rosietable #raisingmoney #whatspringboardmeanstome

One of my favourite moments at the Springboard charity ball last night .. a picture from each of the kids in Rosie's class went for £1050! Amazing! #springboardcharityball #auction

Much needed fun night out with these lovely ladies!

Barcelona for work this week with a little time for fun inbetween! #barcelona #marketingteam

So something super cool happened today.... Rosie's new wheels finally arrived! She is absolutely loving her speedy Koala power chair and the ability to move up and down independently too. We can't wait for all the new adventures and want to thank everyone who generously donated to enable this freedom for Rosie. THANK YOU SO MUCH! ❤ #rosiesnewwheels #koalapowerchair #freedom #thankyou #crowdfunding

Bonfire night 2018 #dialhillfireworks #fireworks2018 #dialhillclevedon

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