My Weak Muscles

The journey of a little girl living with Nemaline Myopathy

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My Weak Muscles

Here you've found the journey of an inspirational little lady called Rosie who struggles with ordinary everyday activities like sitting, eating, walking and smiling due to a severe muscle weakness disorder. What she lacks in physical strength she sure makes up for in mind and spirit. She is a real warrior facing every day challenges with grace and humour.

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Evening cuddles after school/work with my little lady ❤

Cuddles and kisses with Norman the guinea pig! Norman is a lovely pet for Rosie, chilled out, easy to care for and loves hugs.

Saturday #decopatching. We've found a craft that Rosie can do and enjoys in small doses! Today she chose reindeers (as she is not willing to accept that Christmas is over for another year!) and any trip to @hobbycrafthq always makes a great day in my book! #decopatch #craftsforkids #musculardystyophy #myweakmuscles

Rosie chose this book from school today. I love her choices (over Christmas it was a book about caring for guinea pigs!) But this one #breaksmyheart.

This little lady just #lovestosing🎤 It's our favourite way to start each day! Loving @jessglynne after getting her album for Christmas! #weakmusclesstrongvoice #musculardystrophy #nemalinemyopathy #singingcovers

Christmas morning break through for the big present reveal! #bigreveal #santasbeen #doorpaperwrap

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