Rosie has a Percutaneous Endoscopic Gastrostomy (PEG).
This is a feeding tube which is placed through her abdominal wall and directly into her stomach. … More The best way to clean a Percutaneous Endoscopic Gastrostomy (PEG) site
A few years ago I wrote a couple of blog posts about Rosie being diagnosed with Mitochondrial Complex 1 deficiency. It was a bitter blow followed by a total miracle.
Over the last few years there have been big questions about how … More Rosie in the medical history books
Rosie is so ready for school.
Not to say she hasn’t loved the last few years with her daddy making friends with anyone who’ll chat to her, taking life into her own hands at the skate park or causing mayhem in … More Off to school
The best way to descend from the roof of Africa is to sand surf. The slopes are steep and sandy and the guides want to get you down as quickly as possible to avoid the unfiltered rays of the sun – which are growing stronger by the minute … More Mt. Kilimanjaro Part 6: The final part of the journey
We were first introduced to Children’s Hospice South West (CHSW) in 2015 when Rosie was diagnosed with Nemaline Myopathy.
CHSW is a charity providing respite and hospice care … More Weekend break at Charlton Farm Children’s Hospice
We were able to sleep in until 6:30 this morning – what a delight.
The kind porters once again bringing a very welcome cup of coffee to the tent door and making sure we were OK. We autopilot into our now seamless morning routine … More Mt. Kilimanjaro Part 5 : Reaching the Summit
Baranco camp was busy and tension ran high. Today we’d be tackling the infamous Baranco Wall – a 257m zig zag scramble on the next stage of our journey. The Great Baranco Wall is known locally … More Mt. Kilimanjaro Part 4 : Baranco Camp > Karanga Camp
We’d booked tickets months ago to see The Lion King at London’s Lyceum Theatre. Part as a wedding anniversary present from Iain and I to each other and part because Rosie really got into this Disney film in a big way. … More The Lion King
It’s been a while!
To be honest, I haven’t felt like writing much – nor have I had the time or energy.
Life found my weak points and relentlessly … More “Enough”
Another 6am start and another welcome hot cup of coffee made outside the door of the tent by one of our kind porters. I slept for six hours last night and despite feeling rested and well, I awake with my emotions in turmoil. … More Mt Kilimanjaro Part 3 : Shira Cave Camp > Lava Tower > Baranco Camp
My Weak Muscles 